Effective altruism (in Swindon)

I’m not sure if I understand the concept correctly but it seems to be about praising people and organisations that do good.

I normally complain here about various options of support that seem to be available in the UK, but when one (especially an autistic one) reaches out, it turns out there’s nothing substantial there or even, possibly, the support is harmful; but then I certainly experienced people and organisations who deliver what was promised, possibly slightly more at times, and who worked hard to help me through various life difficulties.

I suppose like with everything else, we need to apply 80/20 rule. If the organisation takes money from the government for 100 percent of their activity but somehow only 80 percent has been delivered (uncovered staff sicknesses, double booked rooms and such) we should decide they’re doing well.

Sometimes an organisation may be doing well in general but is worried about their funding and therefore refuses to participate in anything new. Which is a shame but we need to look at things from their perspective too. Funding is the thing, unfortunately. If it wasn’t, we would be living in a communist country.

But I believe I know people and organisations that deliver 95 percent of the time while working with me and I’m going to list them here:

NHS is great. I was always complaining that NHS doctors never diagnosed me ‘with anything’ – but maybe it’s because I am generally healthy? Guess what, after going on aripiprazole my levels of energy improved dramatically and now I have too much of it. Maybe it was all what it was then? Anxiety and extreme mental exhaustion?

Also, during my stay in the hospital I was always treated well and there was no misunderstandings between me and the staff. I feel I was listened well, my views, the same before like during my stay, were taken into consideration and I was given the chance to try the medication that I felt will work best. I’d actually say NHS exceeded the 100 percent. Maybe because they don’t have to worry about funding that much?

Not to mention they really must be constantly monitoring me if they know exactly when to send me an ambulance.

(BTW guys, I’m fine for now! You’re doing an amazing job!)

Georgina – a young lady from Swindon Advocacy Movement. She always remembered what I said, confirmed everything before acting on my behalf and was very down to earth while extremely committed at the same time.

Nothing came out of my complaint at the time but I guess that still gave me confidence to act on my own behalf now. Also, due to the complaint, I was allocated Inspector Love – an avatar at the police station. Who else has an avatar at the police station? I do. Therefore I must be special. Thank you!

Richmond Fellowship – a service that supports me with employment. They used to be called IPS? I’m really confused, maybe it’s was a made up name because they were worried I’d be complaining about them on the blog?

They effectively hovering around, never too close, never far away, providing me with hints – it’s their consultant who suggested to me to apply for a job in Fessey House, and also them who casually said ‘good’ when I said I left volunteering in the radio. Like if they knew something? But what?… Never mind.

And maybe that’s what I need? Not holding my hand every step of the way because I know what I’m doing here and there; I just don’t know where I’m going to get as a result of my actions. Maybe I need someone to light the way for me instead?

And maybe I really do need it because, otherwise, I’ll end up like my dad?

And the Access to Work service I tried after my first episode just really wasn’t doing it for me. At all!

Ipsum – they are charity that provide support for people with mental health problems through art and music. I tried them briefly after my first episode and loved art therapy sessions. Unfortunately pandemic hit shortly after, so I only attended a few times.

I tried to come back later but I was already doing my digital patterns and real art sessions didn’t give me the same feeling.

But you know what I liked the most about Ipsum? That they delivered more than promised. I was told I’d be having art therapy sessions but I knew it didn’t mean we will be discussing each other problems. I knew ‘therapy’ was just a key word. However, the sessions actually felt very therapeutic.

Also I was never told or even hinted the service is there to support me with any real life problems. If I decided to discuss any, the opinions of staff and other service users would be just like options to consider and I’d be aware I need to use my own judgement; not like what happened with my autism diagnosis.

I hope you’ll find this post useful guys. And ladies. Thanks again for reading. I love all 5 of you, spread across the entire World 😛

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