Being off work – a little sum up

From what I remember, the last time I was actually at work was around the end of April, so it’s approximately 6 months now. Therefore I’d like to sum up this time here, not from the perspective of someone who can’t find a job (I did only start looking recently and received some job offers immediately) or someone who can’t pay the bills or put food on the table (most of my bills are paid by direct debit so that’s not an effort at all and I usually eat on the sofa) but from the perspective of an autistic person who managed to take time off and reflect on herself.

Initially, after I was suspended, but still employed, I took a bit of time to just rest. The year before I was suspended was a difficult one: in December 2019 I was sectioned while having a psychotic episode (a second one) and I spent a month in the hospital and then a few more weeks at home, first off sick, then working part time as a phased return. At the beginning of March 2020 I went to Poland to spend time with my family and that’s when Polish government introduced lockdown. It was all very stressful, while it was meant as a holiday before going back to work full time.

I managed to come back to the UK on one of the rescue flights a few days before I was initially planning to as staying there I was worried too much. I remember than when I was packing I got obsessed with taking all my belongings with me, like some acrylic paint that I was using to do art after recovering from my first psychosis, pijamas that was always there waiting for me to come over, some books I used to read in secondary school or even some not very elegant underwear. I ended up going back with two suitcases, not just one. I remember having that thought while packing that I’d never go back there… and that kind of turned out to be true. I went back there but things were never the same any more.

I came back to the UK, went to work, did like two or 3 shifts and my dad suddenly died. And I couldn’t go to the funeral.

I didn’t have good relationship with my dad at all but I was always telling myself that it’s due to his mental health problems and I really needed to see him that last time to say that I understand and forgive him and love him anyway and that was taken away from me, the same like his entire life.

In the meantime the UK introduced lockdown and all the services that I was intending to use to feel better, that finally were being available to me due to having history of two psychotic episodes (they were not available when I was just autistic) were starting to operate online instead of face to face and it didn’t agree with me. I also was unable to see The Boyfriend for several weeks.

In May I found out mum was taken to the hospital and from there to the care home, without asking her if that’s what she wanted or me what I thought about that. The care home staff was terrible and she was complaining of suicidal thoughts so when government in Poland suspended quarantine for people coming from abroad I went back and took mum out. I then quickly found out that there’s loads of money missing from her bank account. That was in the middle of August 2020.

Then mum and me decided she can’t stay in Poland so she’d come with me. My brother was drinking more severely than before and mum would be at risk of being hurt if she stayed there.

So at the beginning of September mum came with me and almost immediately wanted to go back. She would come into my bedroom on loads of mornings when I was meant to go to work to talk about how she’s worried about my brother and then I had to really rush in order not to be late. While my brother would call us and scream at her. Ten minutes after the phone call finished she’d say that she had a feeling that he changed. She was trying to control my spending and comment on clothes I was wearing and how I arranged my flat.

At the same time her bank completely ignored our complaints. At some point they actually changed the subject of complaint from ‘missing money’ into ‘poor customer service’. It wasn’t until I got the police involved that we finally felt someone is listening. Still, things were taking loads of time and we were asked to go there to give witness statement and, pandemic aside, when I was seeing how bank ignored us and our evidence for months, I started thinking that they’re all part of organised crime and when we go there, they’ll find us, kidnap and kill us to keep us quiet forever. It was reminding me the situation with Home Group – that was exactly subject of my delusions during my first psychotic episode (although it’s quite obvious that Home Group would like to keep me quiet, isn’t that right Mr Henderson?) and I started getting somehow paranoid.

Around the same time pharmacy (or maybe it was meds prescription service?) messed up my meds two months in a row so I’d decide to get off them as it was too stressful worrying if I’m going to get them on time…

I was off sick for three weeks around the time, certainly not enough, but then I had mum around the house moaning the entire time (well, I can’t really blame her for being stressed, it’s just that I didn’t know how to deal with that any more) so I just ended up going back to work. And that’s what happened… I ended up suspended and then fired. I’d never expected that’s what would happen to me, but it did.

So, first of all, I took some time to just do nothing and recuperate. Then, I wrote My Story. I’m glad I was off work when I did it as it needed a lot of focus to decide what details need to go into it, what needs to be left out. It took me two weeks to write it. If I was working at the same time I’d need probably like 6 months for that as my thinking process would be affected if I wouldn’t be able to fully focus on it.

Then I had this idea to start a website. At first it was meant to be very informative one and my personal experiences were meant to be left out. I wanted the website to be the a start of my own business – one where I’d be giving speeches to companies about my experience of employment with Home Group (at the time I still called them The Company) and it was meant to draw attention to workplace discrimination in relation to autism.

If you only just started reading now, I was employed by Home Group, harrased by a colleague, asked GP for autism diagnosis referral (that I earlier thought won’t be needed), got prioritised by the diagnostic centre due to my work situation but the diagnosis didn’t stop the harassment so I handed in my notice and took Home Group to employment tribunal where they claimed my diagnosis was private and they organised it through AXA occupational health! Seriously! That’s how bad workplace harassment can be if you’re on the spectrum.

So, as I was thinking, that was very important story for people to hear but knew that Home Group would likely try to stop me if I try to talk about it just like that so I was spending loads of time planning what to do about that. I was even trying to arrange for a legal advice but at the end decided not to proceed with it. Legal advice felt like I was going for a fight and that wasn’t my intention at all. My intention was to raise awareness.

So anyway, as I was thinking how to secure my right to talking openly about what happened to me in Home Group I realised I missed an important factor: if I approach businesses with my story, they may possibly want to pay for me to talk to their staff, at least initially, and I may be able to get my business going for a while but the end result won’t be what I was aiming for, it won’t be better understanding and inclusion for an autistic staff.

The end result will be that people in charge get that message accross: if you have an autistic employee taking you to employment tribunal you’d better check all the paper work five times!

That wasn’t what I was aiming for. What I was aiming for was understanding and inclusion and therefore possibly from this place in this post I should express that I’m ready to forgive (well, at least I’m trying) and that Mr Henderson can contact me through my psychiatric nurse (he was given her contact details once) if he wants to apologise.

However, I need to make it clear here, this is not something I can keep quiet about. As I already stated million times my aim is to raise the awareness. Being quiet won’t achieve that.

3 responses to “Being off work – a little sum up”

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